SURPRISED and somewhat shocked to find there seemed to be no local support group for Motor Neurone Disease sufferers, a local man decided to try to raise funds for this rare neurological degenerative disease that he says seems to be affecting more and more sportspeople.
Former football player, current president and huge supporter of Crediton United FC, Dave Blanchford organised an evening at the Football Club on Friday, March 24 with the Holly Valley Stompers, led by local musician Ady Nuthall.
At least £1,100 was raised for the Motor Neurone Disease Association.
“What triggered off my idea was that there are local people who have developed this neurological disease and it seems we are hearing about more sportspeople too, I just felt something had to be done,” said Dave.
Helping on the evening was Cynthia Hopkins, Association Visitor from Exmouth. She became involved after her husband died from MND more than 30 years ago.
Dave thanked everyone who supported the evening, especially the Lindy Hop group who went along.
Dave also thanked Sharon Hawkins for running the raffle that evening, the Football Club which gave the premises and Jill on the bar, free-of-charge.
Cynthia explained that those funds would be used locally, usually for equipment not available through Social Services. This could be a rise and recline chair, sometimes a person could sleep in the chair, or if they are unable to walk any more.
She added that a group meets in Exeter once a month with a chairman and treasurer. As one of the Association Visitors, Cynthia is trained to support the families and to make contact with the relevant organisations that can help.
“For so many years motor neurone disease has been something people did not know much about, now because of the famous sportspeople and others who have developed it, people are much more aware.
“There are lots of ways people can help, after all the person who has it is the same person even if they have lost their power of speech,” she added.
Anyone who would like to know more should please contact Cynthia on 01395 225227 or email: [email protected] .